Reflective Workshop: Building & Sustaining Relationships in Participatory Action Research
Vas Papageorgiou, Imperial College London
Dorota Chapko, School of Public Health; Imperial College London
Bio: "Lindsay is an Advanced Research Fellow in mental health at the NIHR Patient Safety Translational Research Centre and Honorary Research Psychologist at West London NHS Trust. She currently leads projects examining patient safety in mental health, and her work primarily focuses on detecting youth mental health deterioration using digital devices. Her works embeds meaningful patient and public involvement (PPI) and/or co-production. Her latest work examines the impact of COVID-19 lockdown on the mental health and coping strategies of young people. This work is co-produced with young people with experience of mental health difficulties. Other work centres on sleep, suicide, self-harm and care transitions in vulnerable and seldom-heard groups. She is also Topic Lead in Mental Health and Wellbeing for the Lifestyle Medicine and Prevention module for MBBS at Imperial. Lindsay's background is in psychology (BA, MSc) and forensic psychology (MSc). During her PhD, titled: Insomnia in a prison population: a mixed methods study, she studied the prevalence and associated factors of insomnia including depression, suicidality and anxiety in a large cohort of male and female prisoners at The University of Manchester. She subsequently designed and tested a novel treatment pathway for insomnia for prisoners in a high secure prison in England after winning a Health Foundation Innovating for Improvement Award. She has over 15 years research experience that spans across patient safety, public health, psychology and forensic mental health."
Participatory action research (PAR) puts people with lived experience at the centre of research prioritisation; design; delivery; and dissemination. Building and maintaining relationships between researchers; public partners; community-based organisations; and research participants is therefore vital. However; the COVID-19 pandemic has altered how PAR can be done; time; space and place have been restricted by government guidelines with a shift towards online spaces and apprehensions of voices being missed by digital exclusion.In this 2-hour workshop; you'll hear case studies from researchers and public partners who have worked together to co-produce health research (including HIV; mental health and people living with learning disabilities) and lessons learned from the experience (conducted both before and during the pandemic). We'll reflect on how the opportunities; challenges and adaptations made during the pandemic may impact our relationships in the future. We'll end with key recommendations and learning for achieving co-produced research in the future.