Emerging Ethical Issues in Social Science and Cross- Cultural Research

Date: 5th - 6th May 2005

Venue: University of Sussex

Developments in biomedical ethics nationally and globally are transforming research practices and data storage of medical research.  Social scientists working on medical issues and on research in collaboration with biomedical researchers usually need to gain approval from the appropriate medical research ethics committee.  This needs to be demonstrated prior to publication.  This engagement in which social scientists have to adapt to codes and practices of biomedical ethics raises important ethical dilemmas and questions, and foreshadow wider debates concerning in social sciences, and in particular the legal and moral arguments for social scientists to adopt ethical codes derived from biomedicine.  Both general and practical questions arise and these questions are increasingly important in the context of globalisation and pandemics diseases that transcend national borders?  Can there be one ethical code, or many depending on discipline?  What are the implications for social science research practices of adapting to (adopting) biomedical ethics codes.  Are these different for different social sciences?  Are the issues raised in biomedical engagement any different from those raised in other social research?  Should there be a single code and mode of acceptable practice globally, or differences depending on country, or indeed depending on other social differences such as poverty, education and literacy, religion.  How have these dilemmas been resolved in different places.  The approach is to unite those working on these issues in the UK and overseas, in discussion with (a) senior members of UK and overseas biomedical research ethics committees, and (b) social scientists who have been engaged in developing new approaches to the ethics of biomedical research in developing countries.

Speakers

Charles Bosk University of Pennsylvania
Priscilla Alderson SSRU University of London
Iain Lang Peninsula Medical School/ University of Cambridge
Jan Pahl University of Kent
Nicoli Natrass University of CapeTown
Sam McConkey MRC Laboratories, the Gambia/Royal College of Surgeons in Ireland
Maya Unnithan University of Sussex
Leslie Swartz University of Stellenbosch
Melissa Leach Institute of Development Studies

Course Outline (Programme)

Thursday 5th May

12:30 - 2:00pm

Lunch in Gallery 2, Bramber House

2:00 - 4:00pm

The Biomedical/Social Science Interface: Problems with Bioethics?

If we must have prospective research review, can we make it meaningful? A complaint, a remedy, and a research agenda

Charles Bosk (University of Pennsylvania)

Presentation

The biomedical-social science interface: problems with bioethics and contributions from social science

Priscilla Alderson (SSRU University of London)

Presentation

5:00 - 7:00pm

Formal Governance and Social Science Research

Ethical governance as resource and as obstacle: findings from a consultation with qualitative researchers

Iain Lang (Peninsula Medical School/ University of Cambridge)

Presentation

Research governance in social science and social care research

Jan Pahl (University of Kent)

Presentation

Friday 6th May

9:00 - 11:00am

International and Cross-Cultural Research I : Ethical Dilemmas

'Us doctors REALLY help people - you social scientists just study them': Tensions over the value and purpose of AIDS-related research in South Africa

Nicoli Natrass (University of CapeTown)

Presentation

Biomedical research in and cross-cultural sensitivities in the Gambia

Sam McConkey (MRC Laboratories, the Gambia/Royal College of Surgeons in Ireland)

11:30 - 1:30pm

International and Cross-Cultural Research II : Cultural Sensitivities

Anthropology and Bioethics: linking global values with local practices

Maya Unnithan (University of Sussex)

Presentation

Participation, expertise and science

Leslie Swartz (University of Stellenbosch)

Presentation

Fluid anxieties: technoscience and the economy of blood in The Gambia

Melissa Leach (Institute of Development Studies)

(Co-authors: Melissa Leach, James Fairhead, Mary Small, Jackie Cassell)

1:30 - 2:00pm

Lunch

2:00 - 4:00pm

Agenda-setting/ future issues roundtable

Location

The seminar will be held at:

Gallery 1

3rd Floor

Bramber House

Arts Road

University of Sussex

Duration

Thursday 12:30pm – 7:00pm
Friday 09:00am – 4:00pm

Contact

Email: j.holmwood@sussex.ac.uk