The ethics of research using existing data - analysing without consent
Date:
18/06/2018
Organised by:
Royal Statistical Society and NCRM
Presenter:
Madeleine Murtagh, Peter Elias, Mary Tully, Simon Whitworth, Tony Calland
Level:
Entry (no or almost no prior knowledge)
Contact:
Tom King, tk.socstats@gmail.com
Map:
View in Google Maps (M139PL)
Venue:
Room G7, Ground Floor, Humanities, Bridgeford Street Building, Manchester University
Description:
Current difficulties of data usage stem from access to data being much greater than consent to use it for research purposes. In social science, previously collected or freely available data have suffered from a lack of ethical scrutiny processes. Meanwhile official data from health and government sources have had legal processes about disclosure of identity and restrictions to specific types of use. To follow up the recent RSS sponsored NCRM event on creating research data policy we will discuss the evolution of these processes and the role for the RSS.
Active participation will be required so please bring questions and concerns.
Speakers:
Madeleine Murtagh (Newcastle)
Madeleine chairs METADAC and will outline their evolving approach to ethics of genetic data including international and interdisciplinary perspective.
Peter Elias (Warwick)
Peter will speak about an ESRC sponsored OECD report he chaired on the ethics of emerging data in social sciences.
Mary Tully (Manchester)
Mary will speak about citizen jury work by Connected Health Cities and Farr, which will include some interaction, subject to technology.
Simon Whitworth (UKSA)
Simon will describe the evolution of the ethics of access to data through ONS and in future through the research provisions of the Digital Economy Act.
Tony Calland (NHS)
Tony chair the confidential advisory group (CAG) of the HRA and will outline the legal and ethical importance of privacy when using existing health data in research
Cost:
Free
Website and registration:
Region:
North West
Keywords:
Qualitative Data Handling and Data Analysis, Quantitative Data Handling and Data Analysis, Ethics
Related publications and presentations:
Qualitative Data Handling and Data Analysis
Quantitative Data Handling and Data Analysis